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Former Canora resident helps dementia patients

Family has always been important to Cheryl Williams (nee Lewchuk) of Melville. When she found out that her mother Elsie Lewchuk was suffering from dementia, Williams was determined to find a way to support her.

Family has always been important to Cheryl Williams (nee Lewchuk) of Melville. When she found out that her mother Elsie Lewchuk was suffering from dementia, Williams was determined to find a way to support her.

Williams grew up in Canora, and worked for a local business for several years after high school graduation.

After getting married she lived in Regina for a number of years, until she, her husband Bob and son Bryce came back to Canora in 1999. In 2007 the family moved to Bob鈥檚 home town of Melville, where they still reside.

Williams鈥 mother has been a resident of Gateway Lodge in Canora since April, 2017.

鈥淭he signs and progression of the disease have been very slow,鈥 she said. 鈥淚t would be hard to put a date as to when it started or for how long. Mom had passed the doctor鈥檚 testing criteria. But she experienced a serious health issue in 2015 with a fall that broke her left wrist. Then almost a year later she had another fall and broke her right wrist, and we as a family became more concerned.鈥

Williams said family members visit her mother as often as possible and do what they can to help, including decorating the walls with labelled pictures of family members to give staff and visitors conversation starters.

鈥淪he has a television/DVD player in her room so she can watch her favourite shows and we can play DVD鈥檚 of her granddaughter Jordelle鈥檚 Ukrainian dance concerts,鈥 said Williams. 鈥淒ad brings her the Courier and magazines to read.鈥

She admits that it鈥檚 hard to see the deterioration in her mother鈥檚 condition and know that it can鈥檛 be improved or fixed.

鈥淲e鈥檙e not always sure of what and why mom says the things she says when we visit,鈥 said Williams. 鈥淲e also don鈥檛 know if she means or uses the right words or names during those discussions. We sometimes think she knows who we are but then there are other visits when we are somebody else. As adults we can come to terms with the change but it鈥檚 harder for the grandchildren to see their Baba that way.鈥澛

Williams said she considered making a financial donation to support her mother in her battle with dementia, but decided on a more direct approach.

鈥淚 was told that monetary donations are gobbled up, to a significant extent, by administration costs and rarely is the full amount donated used entirely for the cause intended,鈥 she explained.

Williams turned to the Internet for ideas and information about dementia. She came across a website for the Alzheimer鈥檚 office in Ontario which was providing kits to help those dealing with Alzheimer鈥檚 disease, a type of dementia.

鈥淚 felt this was the answer. I came across written step-by-step instructions with diagrams of a 鈥渢widdle-muff,鈥 recalled Williams. 鈥淚 don鈥檛 knit, never learned how, and when my mother-in-law tried to show me, I never got the hang of it. But I had the knitting needles and some yarn. Armed with YouTube video instruction, I attempted to knit. After several days of heavy concentration to keep the tension right and not slip a stitch, I had knitted a 26-inch long by 6-inch wide strip. I had to find a quicker process and discovered a $30 knitting loom kit. From September to the middle of December of 2018, I was able to complete 18 muffs and have donated them to the Canora Gateway Lodge. In January I completed another seven.鈥

鈥淚 found out I鈥檓 much faster and better when using a loom. Besides, I don鈥檛 slip a stitch or have to remember whether I鈥檓 making a pearl stitch or a knit stitch.鈥

The twiddle-muffs are knitted sleeves formed into a tube to allow a person鈥檚 hands to easily slide in from the ends.

鈥淭hey provide visual and sensory stimulation, including warmth for cold hands,鈥 explained Williams. 鈥淎nd they distract the patient from scratching at their skin or picking at their clothing.聽 It also is known to calm agitation and keep busy hands busy and the patients occupied.鈥

The twiddle-muffs can be made from any type of yarn suitable for institutional use and its laundry system, but Williams recommends softer yarn to maximize patient comfort.

鈥淭he addition of buttons, pom-poms, ribbons and strings that are secured very well can be placed on the outside and inside to provide things to touch and hold,鈥 she said. 鈥淭hese accessories must be very secure so as not to be a choking hazard and also short in length so that the patient does not have the ability to wrap it around a finger and cut off circulation.鈥

Each twiddle-muff is one of a kind, made of different colours and combinations of colours, according to the preferences of the patient.

Around the same time that she discovered the twiddle-muffs, Williams came across lap mats.

鈥淭hey were available to purchase through a wholesale supplier that sold therapy items. I didn鈥檛 want to make the purchase online and thought I could re-create and adapt it to my mom鈥檚 likings.鈥

Williams said the lap mats are sensory stimulating oversized placemats, and can be accessorized with features such as buttons, zippers, ribbons and pockets.

鈥淭he mat is placed on the person鈥檚 lap. It provides an activity, keeping the hands busy. It also keeps the legs warm. It can be used while sitting in an upright position or while lying down.

It helps the brain and body stay active while in a repetitive mode. It calms, distracts, lessens the loneliness and helps pass the time.鈥

Williams made the mats from materials donated by three Melville sewing enthusiasts.

鈥淭hey loved the idea and wanted to contribute,鈥 she gratefully recalled. 鈥淔abrics used are cotton, fleece, microfibre, and flannel. The inside material is a batting to provide stiffness. The mats are reversible and have straps for attachment to the hand rails of a chair or wheelchair to prevent slippage.鈥

From September to the end of January, Williams made a total of 29 mats and donated them to Gateway Lodge.

She encourages others to take up the challenge and get involved.

鈥淢elville District Quilters Guild is excited about adding this project to their group鈥檚 activities.鈥

Williams said making lap mats and twiddle muffs has been well worth the effort.

鈥淚t鈥檚 a very good feeling. Making and producing these items provides a sense of satisfaction,鈥 she said. 鈥淢om is a giving person who was active in the community. It is part of our heritage. It is a pleasure for me to pay it forward and give back to the elderly.鈥

Her intention is to provide the Canora Gateway Lodge with the first 62 sleeves and mats, one for each bed.聽

鈥淎fter that, I think it would be wonderful to have these items available to new residents at Gateway Lodge as a fundraiser,鈥 Williams concluded.

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